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California State University San Bernardino Magazine

Palm Desert Campus
Fred Jandt, interim dean

Fall 2004

Families Tackling The Autism Puzzle

With the reported incidence of autism increasing dramatically — sometimes as much as 15 percent in a year — experts are still uncertain if better reporting is bringing more cases to light or unknown factors are actually causing more autism.

“It’s clearly a bio-physical disorder,” said Dwight Sweeney, director of Cal State San Bernardino’s University Center for Developmental Disabilities (UCDD), “and it boils down to two questions: Why are certain genes predisposed to autism? And what is triggering the disorder in those predisposed genes?”

The director of Cal State San Bernardino’s UCDD since 1997 and a professor of educational psychology and counseling at the university, Sweeney opened a new comprehensive program for young people with autism and their families in the Coachella Valley earlier this year. The program serves local families coping with autism and other pervasive developmental disabilities. It’s been operating at the CSUSB campus for 13 years.

“Autism isn’t an automatic ‘life sentence,’ as long as parents can find support and use it,” said Sweeney, who is a nationally known expert on autism research, with experience in the field in Colorado, Michigan and Pennsylvania. He is also a past president of the California Council for Children with Behavioral Disorders. “The problem with autism is that it’s not just one thing. It’s a ‘spectrum disorder’ affecting communication and social relationships.”

Most parents of children with autism discover symptoms of withdrawal occurring between the ages of 3 and 5. In many cases, a sudden onset seems to be related to an experience like the flu, a virus, a strong reaction to fever or even a toxic reaction to common childhood vaccines. However, in other cases symptoms develop gradually, or seem to be apparent from birth or shortly after. “Nobody knows what causes it,” Sweeney said. “Nobody has a cure. At this point there’s no genetic test to predict the presence of autism.” He said research is continuing and scientists hope to make progress in both treatment and diagnosis in coming years.

The support services for families at the UCDD include instruction to children to increase socialization, communication and appropriate behaviors, activities for parents and siblings, instruction in parenting techniques and exercises to enhance cooperation of schools and agencies that serve children enrolled in the program.

The UCDD is one of the largest such programs in the nation, serving more than 90 families each week. Treatment usually consists of a once-a-week session, lasting two and one-half hours. (More treatments per week are available in some instances.) Parents participate in a separate weekly information and support group. Sweeney said the typical course is two years.

During construction of the permanent Palm Desert Campus on Cook Street, UCDD is temporarily housed at the Workforce Development Center in Indio. The planned third building at the campus will be for health sciences programs, including UCDD. The fund-raising campaign for that building is already underway. Recently, a gift of $5,000 to the PDC from the Agua Caliente Band of Cahuilla Indians went toward the construction of the health sciences building.

The university has set a goal of raising $10 million in private, foundation and/or local government funds to erect the health sciences building, which will house the nursing education program and other allied health sciences.

Desert HistoryCabazon tribal elder Joe Benitez

Cabazon tribal elder Joe Benitez talks about the exhibit of Native American artwork on display in the Mary Stuart Rogers Gateway Building at the Palm Desert Campus. The exhibit is on indefinite loan from the Agua Caliente Cultural Museum and the Cabazon Cultural Museum.

Saving Time

They included student papers predicting how the world would look in 2054, a laptop computer, issues of The Desert Sun newspaper, issues of the Futurist and Time and pictures of local students. For this dedication of a time capsule, Palm Desert Mayor Bob Spiegel led Cal State San Bernardino, College of the Desert, area high school and World Affairs Council of the Desert representatives and guests as they collected at Cook Street and Frank Sinatra Drive to bury the past before it ever was.

When guests arrived they signed a document that was placed with the other memorabilia in the capsule, marked with a bronze plaque. Michelle Pollard, a student at the Palm Desert Campus, later read a portion of the predictions she made in her paper. Fifty years from now, on Oct. 10, this snapshot in time will be broken open.

 

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Families Tackling The Autism Puzzle

FAMILIES TACKLING THE AUTISM PUZZLE

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